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Post by Penny on Oct 7, 2009 23:37:00 GMT -5
Welcome to the Gastroparesis Forum!
Please take a moment to introduce yourself and tell us a little about yourself outside the gastric realm! Remember that though we have Gastroparesis it does not have us, we are more than a vessel for a condition.
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Post by laddybug on Nov 14, 2009 17:46:58 GMT -5
I have gastroparesis due to Scleroderma. I just found this out after suspecting for a long time that my stomach wasn't emptying. I am on reglan and don't want to continue very long on it because of its reputation. I have been on it for two weeks and really feel better, no nausea or vomiting and I can EAT a little. What other medication are people on that works as well as reglan with less side effects? This is all new to me. Liquids and soft food are so much better digested and sit better in my tummy. I need advice, please help me to adjust to this on top of the scleroderma
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Post by Penny on Nov 17, 2009 1:48:49 GMT -5
Ladybug, Welcome to the Forum, as you can see it is very new and does not get much activity as of yet. There is a wonderful website for Scleroderma at www.sclero.org and the website that is the main site of this forum at www.gastroparesis.webs.com that has links to pages listing specialists around the world as well as helpful hints. I am sure since you have been tested for GP that they already checked you for watermellon stomach and barrets esophagus... there are so many things with sclero alone that you must deal with that having GP on top of it all is very unfair. That said, ask any questions that you have and if I do not have the answers I will search until I can find the answers for you... it can be very hard to find information about Gastroparesis because there is very little research being done on it but I managed to find a wonderful Dr who has become used to me calling him when someone has a question that I don't know the answer to and he directs me to 'insider' sites that often can answer things. Liqiud diets do digest easier, since they take very little work by the stomach, but there are tricks you can use to expand your diet a bit... like what I call the 'contrary diet'. Remember that fresh fruits and veggies are your digestive enemy... they often have natural fibers that you just cannot digest and cause troubles. Peel everything you eat and cook it all until you can cut it with a spoon. Consider beef an endangered species as well as pork... instead focus on skinless boneless chicken breast or better yet ground buffalo, venison, lamb or goat. (of all the ground meats goat has the least fat and is the best tollerated due to that) Baby foods can be a great discovery... the stage 1 and stage 2 banana, apple, pear, sweetpotato and others like that are very smooth and a container is just the right size for a snack or on bad GP days a small meal along with a Ensure or Boost. Just remember that no two cases of Gastroparesis are alike, some people do very well on Reglan and never have an issue with it, others cannot take it and do well on something like Erythromycin... I have even been given Haldol by IV recently to try to control my nausea with good results. It is a matter of finding what works best with your body.
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kna4
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Post by kna4 on Nov 13, 2011 11:35:36 GMT -5
Hello!! i was diagnosed with gastroparesis last week. i have a doctors appointment tomorrow to talk about how we are going to treat it. I am not sure what the cause of it for me is but hopefully i will find something to help make me feel better!! I have been having symptoms for a few years now and i am very exited to have found out what the cause of them is so that i have something to work off of when it comes to treatment. i am super curious to find foods that are easily tolerable so that i can eat without so many problems! how do i know when the live chats happen!? id love to take part in them! also a little about myself outside the gastric world lol! i am a sophomore in college mahoring in childhood and special education! and i did gymnastics for 17 years and coach it part time! im very excited i found this website!
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Post by davelectronic on Jun 11, 2012 16:05:07 GMT -5
Hello and welcome to all new members, and old members returning, i know there is no activity yet, but i am hoping for a few to join and get the ball rolling, it does not all have to be doom and gloom, other discussions as well, but positive talk is always the best way forward, negativity leads no where, although we all get down sometimes. Pop in for a chat, tell us your story, i am fairly sure that its only me at the moment, but i wont give up, as long as i can function on the PC even if only for short times, longer on better days when i get them. PS. i really don't bite, LOL ;D
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Post by bayouhunter76 on Jul 21, 2013 21:55:36 GMT -5
I have so many questions and the main one is can gastroparesis fluctuate in it's intensity? Atleast a part of everyday I feel bad and have for a year and a half now. They did a ge test last year along with to upper and lower G.I. test that came back normal. They removed my gallbladder thinking that was the problem and it proved to not change anything. I have been to a Lyme doctor, two GI docs, two neurologists , and primary doctors. Nobody can figure out what's going on and I feel like throwing in the towel. I have a wonderful wife and two young boys. Any advice on what I can do to extend the time to take care of them would really be appreciated. The constant feeling of being full, needing to vomit, and needing to have a bowel movement at the same time is taking it's toll on me. It does not matter what I eat or drink I feel sick It just varies in how bad it is. Vegetables and fruit seems to all be bad. I can't eat any dairy or mammalian meat due to an allergy. I just need to make it tolerable so that I can be there for them. Sorry, I just had to unload.
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Post by Yoda55 on Apr 26, 2016 5:18:06 GMT -5
Hi! I was DX with Moderate Gastroparesis a couple of weeks ago. Before I had the Gastric emptying test my GI doctor had me go ahead and start the small meals 6 times a day diet. WOW I couldn't believe how well that has worked in helping to manage my symptoms. I have had stomach problems for years. I had my gallbladder removed last August and two weeks after the surgery I had such intense pain in the same region as before I had my gall bladder removed that I thought they forgot to take it out, LOL. It has taken me this long to finally get an answer to what is going on. I am surprised at least in my situation that the internists at the hospital I stayed in during two attacks of Gastroparesis did not know or think to check for it. I was told it was all in my head and I felt so humiliated by this whole ordeal, even tho my liver enzymes were off as well as my electrolytes. I have some fibrosis of the liver (minor at this point) and also had acute pancreatitis around the time of the gall bladder surgery. Anyway, all of last summer was horrible, with test after test and then the surgery and more tests. I was SO happy to have the gastric emptying test as I just knew that had to be the answer to what was going on. It sounds crazy to be happy to have a name or diagnosis for what is going on with me, but after being treated like I was out of my mind It feels good to know that I am justified in some way. I am happy to say that this is the first spring/summer in quite a few years that I have actually gotten outside and started back doing the things I always loved to do before this Gastro started. I have gone fishing, ridden my motorcycle, taken walks, played with my dogs outside, been able to get down on my knees and weed....yes that was a biggy as I usually get very nauseous bending forward, but now that I am on this diet the nausea has lessened a great deal. I have heard that Gastroparesis can get worse over time, just wondering if I keep to my diet and small meals if that will slow down or stop the progress of the disease.(?) Also, has anyone else NOT lost weight from this. I have not lost weight in the last couple of years and am a few lbs. over weight and I always see loss of weight as a major symptom and outcome. Also up till 4 yrs. ago I was anorexic from the age of 19 and I'm 51 now, could that have caused this to happen to me? Mine is not caused by diabetes. I have only been given the results of my test by the nurse and received them in the mail as well and will go to my follow up visit to my GI after they do one more endoscope. I am also waiting for a call to get an appt. with a dietitian. So sorry I rambled on. I don't see the GI doc until June and I have so many questions. I'm off to read more posts and see what others have to say and how they manage with this. Thanks for letting me talk.
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sunshine
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Is anyone ever here?
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Post by sunshine on Mar 20, 2022 16:38:56 GMT -5
Hello, my name is Cheryl G, from North Carolina and have been suffering from gastroparesis since about 22 years ago when I survived a stroke. Finally the newest doctor made the proper medication regimen. My stomach attacks are far apart; however, this last one I had this month took so much out of me. I had worked hard for months to get my weight up to around 108 pounds but after this attack I am down to 102.8 pounds. It is very hard to come back from vomiting attacks. Anyone else having similar problems?
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Post by Tina on Mar 23, 2023 4:25:57 GMT -5
I just want to share that I have started getting massages for my gastroparesis. It stimulates the vagal nerve. This has helped tremendously when nothing else has.
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