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Post by Penny on Oct 9, 2009 16:19:49 GMT -5
Will you be getting the H1N1 Flu vaccine?
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Post by alice on Nov 22, 2009 13:58:37 GMT -5
Oh, if only GP was treated like H1N1.....always in the news, people demanding treatments, treatments actually being created, the government getting on board......
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Post by Penny on Nov 22, 2009 18:39:39 GMT -5
Alice,
That is where advocasy comes in... right now it is hard to get anyone to take things seriously because there is so little information out there and many news articles you may come across spread misinformation (if you do a google news search on the word gastroparesis you will see a news article from last week that states only 4000 people have it!) and it is almost impossible to get them to do a correction because once they publish the article they lose interest.
I am (and many other GP Advocasy groups) sending out requests and pleas to national TV shows, magazines and newspapers trying to get someone to clear up the myths and expose just how large of a population is really affected and the severe lack of attention given to it because of the lack of awareness.
One voice screaming can be ignored... we all need to scream and yell combining our voices in a single message... "Gastroparesis is a Common Condition that needs to be taken seriously".
It is my hope that one day the word Gastroparesis will be as well known as Irritable Bowel Syndrome and Acid Reflux are and that there will be better understanding in the Healthcare Industry and more treatment options. A cure would be great, but right now we would settle for safe treatment of symptoms!
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